You Are Invited

Making Our Voices Heard:
Patient-Focused Drug Development Forum
(an EL-PFDD meeting with the FDA)

Friday, October 23, 2020 10am - 4pm EST

What are EL-PFDD meetings?
Externally led patient-focused drug development (EL-PFDD) meetings bring together patients and care partners, US Food and Drug Administration (FDA) representatives, pharmaceutical companies, and doctors who are experts in the particular disease. The goal is to hear from patients who have the disease, in order for the FDA and pharmaceutical companies to understand the patient experience.

Why Attend?
If you are providing PSC clinical care or researching PSC, this is an unusual opportunity to hear the patient perspective on the challenges of living with PSC. This meeting will include summary from international patient survey, patient testimonials and zoom panels on symptoms, treatment, advanced disease, and paediatric experience.
Link will be sent Oct. 23rd early a.m. and
will be available on our website the day-of the event. PSCPartners.org.

Agenda
Our Mission: To provide education and support to PSC patients, families and caregivers and raise funds to research causes, treatments and cures for primary sclerosing cholangitis (PSC).