What are EL-PFDD meetings?
Externally led patient-focused drug development (EL-PFDD) meetings bring together patients and care partners, US Food and Drug Administration (FDA) representatives, pharmaceutical companies, and doctors who are experts in the particular disease. The goal is to hear from patients who have the disease, in order for the FDA and pharmaceutical companies to understand the patient experience.
Why Attend?
If you are providing PSC clinical care or researching PSC, this is an unusual opportunity to hear the patient perspective on the challenges of living with PSC. This meeting will include summary from international patient survey, patient testimonials and zoom panels on symptoms, treatment, advanced disease, and paediatric experience.